N.Y. PBH Law § 2023

§ 2023. Duties of the department. 1. ALS and MND reports and data\nshall be maintained by the department in a manner suitable for research\npurposes and shall be made available to people as set forth in section\ntwo thousand twenty-two of this article.\n 2. All information collection under this article shall be confidential\ninsofar as the identity of individual patients is concerned and shall be\nused solely for the purposes as provided in this article. Access to such\ninformation shall be limited to authorized employees of the department\nas well as persons and organizations identified in section two thousand\ntwenty-two of this article with valid scientific interest and\nqualifications, as determined by the commissioner, who are engaged in\ndemographic, epidemiological, or other similar studies related to public\nhealth.\n 3. The department shall maintain an accurate record of all people who\nare given access to the information contained in the ALS and MND\nregistry. Such a record shall include the name of the person authorizing\naccess, the name, title and organizational affiliation of persons given\naccess, dates of access, and the specific purposes for which information\nis to be used.\n 4. Any person who, in violation of a written agreement to maintain\nconfidentiality, discloses any information provided under this article,\nor who uses information provided under this article in a manner other\nthan that prescribed by the commissioner, may be denied further access\nto any confidential information maintained by the department.\n